Repost from @johnnyknoxville using @RepostRegramApp - This is a wonderful cause. Please help Teddy and others afflicted with this disorder. ❤️❤️
・・・repost from @jonahhill 👇🏼
In February, my best friends’ son @teddyjoefox was diagnosed with an incredibly rare disease called CCHS – Congenital Central Hypoventilation Syndrome – a disorder that affects normal breathing.
Teddy and the 1200 other cases in the world must be supported with a machine to help them breathe. There is no available medication to date and almost all research funding for treatment or a cure comes from private donations.
I have made it my personal mission to help the @CCHSNetwork raise these much needed funds.
To bring awareness to International #CCHSDay on Saturday, I joined Teddy and his amazing parents along with other CCHS children and their families from around the world in a PSA to educate and empower us all to help find a cure.
To watch our PSA, learn more about CCHS, join the global conversation and donate to help find a cure, please visit the link in my bio. THANK YOU. - 4 months ago