#millionsmissing

57,919 posts

Posted @withregram • @fragmented.me I don’t want to go on a philosophical rant with you, but I do want you to realise just how poorly people who have this illness really are. So maybe give them a thought, give them a call, send them a text, write them a letter, even send them a small gift. But most of all, if you can donate money to any of the charities doing research for ME/CFS, then please give generously. Funding for ME/CFS isn’t ring fenced it’s all from donations. So by your giving as generously as you can, this is the only way we are going to get our lives back.
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#alifereMEmbered #canyouseeMEnow
#mecfs #cfsme #cfs #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #myalgice #chronicfatiguesyndrome #chronicfatigue #fibromyalgia #millionsmissing #chronicillness #chronicallyill #invisibleillness #chronicpain #pwme #mecfsrecovery #spoonies #mindfulness #severeme #autoimmunedisease #hope #selfcare #selfkindness #selfcompassion #pain #migraine #butyoudontlooksick

Posted @withregram@fragmented.me I don’t want to go on a philosophical rant with you, but I do want you to realise just how poorly people who have this illness really are. So maybe give them a thought, give them a call, send them a text, write them a letter, even send them a small gift. But most of all, if you can donate money to any of the charities doing research for ME/CFS, then please give generously. Funding for ME/CFS isn’t ring fenced it’s all from donations. So by your giving as generously as you can, this is the only way we are going to get our lives back. . #alifereMEmbered #canyouseeMEnow #mecfs #cfsme #cfs #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #myalgice #chronicfatiguesyndrome #chronicfatigue #fibromyalgia #millionsmissing #chronicillness #chronicallyill #invisibleillness #chronicpain #pwme #mecfsrecovery #spoonies #mindfulness #severeme #autoimmunedisease #hope #selfcare #selfkindness #selfcompassion #pain #migraine #butyoudontlooksick - 17 minutes ago

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Posted @withregram • @fragmented.me #Repost @me.advocacy.uk
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📌 Charlie and their experience with #ME/CFS  #myalgicencephalomyelitis #disabled #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #mecfs #eupd #spoonie #ill #chronicallyill #health #chroniclife #spoonielife #spooniestrong #spooniesisters #diagnosis #spooniesupport #chronicillnesswarrior #mecfs #mecfswarrior #pwme #severeme #millionsmissing

Posted @withregram@fragmented.me #Repost @me.advocacy.uk ****** 📌 Charlie and their experience with #ME /CFS #myalgicencephalomyelitis #disabled #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #mecfs #eupd #spoonie #ill #chronicallyill #health #chroniclife #spoonielife #spooniestrong #spooniesisters #diagnosis #spooniesupport #chronicillnesswarrior #mecfs #mecfswarrior #pwme #severeme #millionsmissing - 22 minutes ago

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#alifereMEmbered #canyouseeMEnow
#mecfs #cfsme #cfs #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #myalgice #chronicfatiguesyndrome #chronicfatigue #fibromyalgia #millionsmissing #chronicillness #chronicallyill #invisibleillness #chronicpain #pwme #mecfsrecovery #spoonies #mindfulness #severeme #autoimmunedisease #hope #selfcare #selfkindness #selfcompassion #pain #migraine #butyoudontlooksick

#alifereMEmbered #canyouseeMEnow #mecfs #cfsme #cfs #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #myalgice #chronicfatiguesyndrome #chronicfatigue #fibromyalgia #millionsmissing #chronicillness #chronicallyill #invisibleillness #chronicpain #pwme #mecfsrecovery #spoonies #mindfulness #severeme #autoimmunedisease #hope #selfcare #selfkindness #selfcompassion #pain #migraine #butyoudontlooksick - 23 minutes ago

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📌 Prue and their experience with #mecfs 
#myalgicencephalomyelitis #disabled #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #mecfs #eupd #spoonie #ill #chronicallyill #health #chroniclife #spoonielife #spooniestrong #spooniesisters #diagnosis #spooniesupport #chronicillnesswarrior #mecfs #mecfswarrior #pwme #severeme #millionsmissing

📌 Prue and their experience with #mecfs #myalgicencephalomyelitis #disabled #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #mecfs #eupd #spoonie #ill #chronicallyill #health #chroniclife #spoonielife #spooniestrong #spooniesisters #diagnosis #spooniesupport #chronicillnesswarrior #mecfs #mecfswarrior #pwme #severeme #millionsmissing - 27 minutes ago

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Posted @withregram • @fragmented.me #Repost @me.advocacy.uk
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#myalgicencephalomyelitis #disabled #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #mecfs #eupd #spoonie #ill #chronicallyill #health #chroniclife #spoonielife #spooniestrong #spooniesisters #diagnosis #spooniesupport #chronicillnesswarrior #mecfs #mecfswarrior #pwme #severeme #millionsmissing

Posted @withregram@fragmented.me #Repost @me.advocacy.uk ****** #myalgicencephalomyelitis #disabled #chronicillness #chronicpain #chronicfatiguesyndrome #chronicfatigue #mecfs #eupd #spoonie #ill #chronicallyill #health #chroniclife #spoonielife #spooniestrong #spooniesisters #diagnosis #spooniesupport #chronicillnesswarrior #mecfs #mecfswarrior #pwme #severeme #millionsmissing - 28 minutes ago

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Quite a view. Good job too as this is just about all I see 🙄 need bird tables and flowers out there. Hopefully get on it this year..well get someone on it 🤣
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#severeME #pwME #myalgicE #MyE #MyalgicEncephalomyelitis #fibro #pots #chronicillness #ChronicPain #fibromyalgia #MillionsMissing #MEAwareness #millionsmissinguk #bedbound #housebound

Quite a view. Good job too as this is just about all I see 🙄 need bird tables and flowers out there. Hopefully get on it this year..well get someone on it 🤣 . . #severeME #pwME #myalgicE #MyE #MyalgicEncephalomyelitis #fibro #pots #chronicillness #ChronicPain #fibromyalgia #MillionsMissing #MEAwareness #millionsmissinguk #bedbound #housebound - 38 minutes ago

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Enjoy the snow video 😊☃️🌨❄ #FarawayGirlSpoonie #ME #Fibromyalgia #chronicillness #palegirl #spoonie #Bumblebee #MyalgicEncephalomyolitis
#chronicpainsyndrome #spineissues #Osteoarthritis #widespreadpain #fatigue #wheelchair #disabled #chronicillness #depression #anxiety #GAD #mentalillness #MillionsMissing #hearingloss #hearingaids #brainfog

Enjoy the snow video 😊☃️🌨❄ #FarawayGirlSpoonie #ME #Fibromyalgia #chronicillness #palegirl #spoonie #Bumblebee #MyalgicEncephalomyolitis #chronicpainsyndrome #spineissues #Osteoarthritis #widespreadpain #fatigue #wheelchair #disabled #chronicillness #depression #anxiety #GAD #mentalillness #MillionsMissing #hearingloss #hearingaids #brainfog - 52 minutes ago

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Woke up to this this morning!⁣
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It's so quiet and peaceful and pretty. Really glad I don't have to go anywhere though⁣
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My cleaner had to cancel because of it, which is a bit rubbish, but she'll come when she can⁣
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The weekend storm and the cold has me in a lot of pain, so resting as usual ⁣
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Wishing you a low pain, low fatigue day xxx ⁣
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#FarawayGirlSpoonie #ME #Fibromyalgia #chronicillness #palegirl #spoonie #Bumblebee #MyalgicEncephalomyolitis⁣
#chronicpainsyndrome #spineissues #Osteoarthritis #widespreadpain #fatigue #wheelchair #disabled #chronicillness #depression #anxiety #GAD #mentalillness #MillionsMissing #hearingloss #hearingaids #brainfog

Woke up to this this morning!⁣ ⁣ It's so quiet and peaceful and pretty. Really glad I don't have to go anywhere though⁣ ⁣ My cleaner had to cancel because of it, which is a bit rubbish, but she'll come when she can⁣ ⁣ The weekend storm and the cold has me in a lot of pain, so resting as usual ⁣ ⁣ Wishing you a low pain, low fatigue day xxx ⁣ ⁣ #FarawayGirlSpoonie #ME #Fibromyalgia #chronicillness #palegirl #spoonie #Bumblebee #MyalgicEncephalomyolitis#chronicpainsyndrome #spineissues #Osteoarthritis #widespreadpain #fatigue #wheelchair #disabled #chronicillness #depression #anxiety #GAD #mentalillness #MillionsMissing #hearingloss #hearingaids #brainfog - 1 hour ago

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Arztbesuche sind für uns eine körperliche, aber auch mentale Herausforderung.
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🍒#findyoursweetspot 
Damit der nächste Arzttermin besser klappt, habe ich dir hier eine kleine Checkliste mit Dingen zusammengestellt, die den Besuch einfacher und besser gestalten sollen!
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⚔️ Warum Arzttermine für #pwme ein zweischneidiges Schwert sind, kannst du im vorherigen Post nachlesen!
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❓Was sind deine Tipps und Tricks, um einen Arztbesuch gut zu überstehen und die Hilfe zu bekommen, die du brauchst?
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🔽🔽Schreib es in die Kommentare!🔽🔽
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🙂Ich bin gespannt 🙂
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#myalgischeenzephalomyelitis #chronischesfatiguesyndrom #pots #posturalesorthostatischestachykardysyndrom #spoonie #pwme #millionsmissing # chronischkrank #chronischeschmerzen #chronischekrankheit 
#mcas #mastzellaktivierungssyndrom #cci #aai #arztbesuch #arzttermin #arzttermine #pimpyourinsta #checkliste #checklisten #ärzte #unterstützung #mecfs

Arztbesuche sind für uns eine körperliche, aber auch mentale Herausforderung. . 🍒#findyoursweetspot Damit der nächste Arzttermin besser klappt, habe ich dir hier eine kleine Checkliste mit Dingen zusammengestellt, die den Besuch einfacher und besser gestalten sollen! . ⚔️ Warum Arzttermine für #pwme ein zweischneidiges Schwert sind, kannst du im vorherigen Post nachlesen! . ❓Was sind deine Tipps und Tricks, um einen Arztbesuch gut zu überstehen und die Hilfe zu bekommen, die du brauchst? . 🔽🔽Schreib es in die Kommentare!🔽🔽 . 🙂Ich bin gespannt 🙂 . . . . . #myalgischeenzephalomyelitis #chronischesfatiguesyndrom #pots #posturalesorthostatischestachykardysyndrom #spoonie #pwme #millionsmissing # chronischkrank #chronischeschmerzen #chronischekrankheit #mcas #mastzellaktivierungssyndrom #cci #aai #arztbesuch #arzttermin #arzttermine #pimpyourinsta #checkliste #checklisten #ärzte #unterstützung #mecfs - 1 hour ago

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Okei.. Det føles superkleint ut å kringkaste at en selv er i avisen.. Men jeg vil veldig gjerne takke @bodonu for den omtenksomme og respektfulle væremåten de viste da de tok kontakt med meg. 
Avisen skulle skrive om usynlig sykdom og jeg ba om å få svare på spørsmålene i e-post over noen dager istedet for et intervju ansikt til ansikt. På denne måten fikk jeg ordlagt meg godt, noe jeg aldri ville ha klart i en samtale. Jeg kunne skrive når jeg hadde energi til det, og slapp å bli fortvilt over at ord i hodet ikke klarte å komme ut av munnen - et vanlig trekk ved sykdommen. Heldigvis kommer ordene alltid ut gjennom tastaturet. 
Jeg innså at svarene jeg oppga var så lange at de omtrent kunne utgjøre en liten bok. Enda følte jeg at jeg ikke hadde fått fortalt halvparten engang. Jeg har visst utrolig mange tanker og erfaringer å dele med de som orker å lese. Jeg føler meg helt riktig framstilt i avisen og er glad for journalistenes omtenksomme væremåte, både ved (det skriftlige) intervjuet og under fotograferingen noen dager senere.

Spesielt glad er jeg for at min kjære Morten fikk litt spalteplass også. Morten er min uvurderlige støtte og jeg hadde aldri klart å holde ut sykdommen på samme måte, uten ham ved min side. Å være pårørende er svært krevende og jeg synes det generelt settes alt for lite fokus på disse hverdagsenglene. Kanskje et tema for mediene framover?

Tusen takk til dere som har sendt meg heiarop de siste dagene, det varmer hjertet! Jeg heier også på alle dere - både med og uten sykdommer - og håper at enhver gjør det beste ut av dagen sin med de forutsetningene man har. Ha en fin dag!

Okei.. Det føles superkleint ut å kringkaste at en selv er i avisen.. Men jeg vil veldig gjerne takke @bodonu for den omtenksomme og respektfulle væremåten de viste da de tok kontakt med meg. Avisen skulle skrive om usynlig sykdom og jeg ba om å få svare på spørsmålene i e-post over noen dager istedet for et intervju ansikt til ansikt. På denne måten fikk jeg ordlagt meg godt, noe jeg aldri ville ha klart i en samtale. Jeg kunne skrive når jeg hadde energi til det, og slapp å bli fortvilt over at ord i hodet ikke klarte å komme ut av munnen - et vanlig trekk ved sykdommen. Heldigvis kommer ordene alltid ut gjennom tastaturet. Jeg innså at svarene jeg oppga var så lange at de omtrent kunne utgjøre en liten bok. Enda følte jeg at jeg ikke hadde fått fortalt halvparten engang. Jeg har visst utrolig mange tanker og erfaringer å dele med de som orker å lese. Jeg føler meg helt riktig framstilt i avisen og er glad for journalistenes omtenksomme væremåte, både ved (det skriftlige) intervjuet og under fotograferingen noen dager senere. Spesielt glad er jeg for at min kjære Morten fikk litt spalteplass også. Morten er min uvurderlige støtte og jeg hadde aldri klart å holde ut sykdommen på samme måte, uten ham ved min side. Å være pårørende er svært krevende og jeg synes det generelt settes alt for lite fokus på disse hverdagsenglene. Kanskje et tema for mediene framover? Tusen takk til dere som har sendt meg heiarop de siste dagene, det varmer hjertet! Jeg heier også på alle dere - både med og uten sykdommer - og håper at enhver gjør det beste ut av dagen sin med de forutsetningene man har. Ha en fin dag! - 2 hours ago

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𝔽𝕝𝕪 𝕞𝕖 𝕥𝕠 𝕥𝕙𝕖 𝕞𝕠𝕠𝕟 ....English Nationals Nottingham Championships 2020, a mud bath, a swampy swamp. If you don’t move, ‘it’ll take you down’ outside Wayne Manor. Where’s Bruce when you need him? 🦇 A race that I won’t be forgetting in a hurry and what a pounding on the body. But mentally and physically rewarding. Loved being part of a team was the best part. Never say you can’t, always say you can try 🤍. #wollatonhall #nottingham #xc #ukrunchat #girlswhocan #runner #running #juststrongambassador #womenshealth #blog #crosscountry #spikes #adrenaline #40something #chronicfatiguesyndrome #me #chronicathlete #bestrong #thisgirlcanrunning #csfrecovery #millionsmissing #meawareness #myalgicencephalomyelitis #chroniclife #mylagicE #autoimmunity #meaction #gritchicks #runningmotivation #runforgood

𝔽𝕝𝕪 𝕞𝕖 𝕥𝕠 𝕥𝕙𝕖 𝕞𝕠𝕠𝕟 ....English Nationals Nottingham Championships 2020, a mud bath, a swampy swamp. If you don’t move, ‘it’ll take you down’ outside Wayne Manor. Where’s Bruce when you need him? 🦇 A race that I won’t be forgetting in a hurry and what a pounding on the body. But mentally and physically rewarding. Loved being part of a team was the best part. Never say you can’t, always say you can try 🤍. #wollatonhall #nottingham #xc #ukrunchat #girlswhocan #runner #running #juststrongambassador #womenshealth #blog #crosscountry #spikes #adrenaline #40something #chronicfatiguesyndrome #me #chronicathlete #bestrong #thisgirlcanrunning #csfrecovery #millionsmissing #meawareness #myalgicencephalomyelitis #chroniclife #mylagicE #autoimmunity #meaction #gritchicks #runningmotivation #runforgood - 2 hours ago

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#myalgicencephalomyelitis #mecfs #meawareness #fibromyalgia #anxiety #depression #millionsmissing #chronicillness #chronicpain #chronicillnessstrong #chronicfatiguesyndrome #chronicfatiguewarrior #fibromyalgiaawareness #fibrowarrior #spoonie #butyoudontlooksick #itsokaynottobeokay #invisibleillness #stillsick #spoonielife #chroniccommunity #invisiblepain Originally posted by @abrokenbattery ❤️

#myalgicencephalomyelitis #mecfs #meawareness #fibromyalgia #anxiety #depression #millionsmissing #chronicillness #chronicpain #chronicillnessstrong #chronicfatiguesyndrome #chronicfatiguewarrior #fibromyalgiaawareness #fibrowarrior #spoonie #butyoudontlooksick #itsokaynottobeokay #invisibleillness #stillsick #spoonielife #chroniccommunity #invisiblepain Originally posted by @abrokenbattery ❤️ - 4 hours ago

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CW: broken guts, pain, poop, ER

Woke up with a migraine this morning, including nausea. Acetaminophen with caffeine fixed the head. Then i had a gut-destroying bowel movement, resulting in pain with every single bite of food and sip of water, followed by burning diarrhea. Dehydration sent me to the ER. Still waiting to talk to a doctor and get fluids. Migraine is back. Goddamn guts couldn't wait two more weeks for my already scheduled colonoscopy.

I'M SO DONE WITH THIS! I want a body that isn't falling apart 😭😭😭

CW: broken guts, pain, poop, ER Woke up with a migraine this morning, including nausea. Acetaminophen with caffeine fixed the head. Then i had a gut-destroying bowel movement, resulting in pain with every single bite of food and sip of water, followed by burning diarrhea. Dehydration sent me to the ER. Still waiting to talk to a doctor and get fluids. Migraine is back. Goddamn guts couldn't wait two more weeks for my already scheduled colonoscopy. I'M SO DONE WITH THIS! I want a body that isn't falling apart 😭😭😭 - 4 hours ago

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M O S S V A L E  P A R K. Such a beautiful spot to hang out. This was last week though, not today. Today is a crash at home with a headache-setting-in kind of day whilst it rains off and on outside. If anyone else is stuck inside today for any reason and needs a change of scenery, here it is. 😊 this place used to host the most beautiful market I've ever been to, situated on the green lawn underneath all of the gigantic old oaks. The atmosphere of this place is hard to describe.

M O S S V A L E P A R K. Such a beautiful spot to hang out. This was last week though, not today. Today is a crash at home with a headache-setting-in kind of day whilst it rains off and on outside. If anyone else is stuck inside today for any reason and needs a change of scenery, here it is. 😊 this place used to host the most beautiful market I've ever been to, situated on the green lawn underneath all of the gigantic old oaks. The atmosphere of this place is hard to describe. - 9 hours ago

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#mentalhealth #mentalhealthawareness #mentalhealthmatters #mentalwellness #mentalhealthadvocate #mentalhealthisimportant

#mentalhealth #mentalhealthawareness #mentalhealthmatters #mentalwellness #mentalhealthadvocate #mentalhealthisimportant - 9 hours ago

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//NEW SERIES//
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This is for you, spouses and friends, coworkers and caregivers, doctors and other minor gods, family members, casual acquaintances, and the entire general public:
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A two-week chronic illness PSA just for YOU.
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Because we know you don't understand what's happened to the person you used to know.
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Because we know you have no frame of reference for chronic illness and how it differs from its acute counterparts.
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Because we know most of you truly desire to say something helpful and encouraging, but you have NO EARTHLY IDEA what that might be.
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And because this darn chronic illness thing doesn't come with so much as a flyer, let alone a handbook.
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So for the next two weeks, I'm going to draw back the protective curtain just for YOU and reveal to you the things the chronically ill person in YOUR life wishes they could tell you, but can't because it's JUST. TOO. VULNERABLE.
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Because TBH, they've been desperate to hear these things—some of which they didn't even know they needed to hear—from you and from others for a LONG TIME.
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But they don't want to have to ASK for it.
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Nor do many of them really even know HOW.
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So, beginning tomorrow, I'M going to be the vulnerable one in their place—
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and I'm going to take some time to tell you
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#whatweneedtohear.
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I hope you'll join us—and I hope you'll encourage others to join in and follow along.
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Because these people in your life—the ones WE call Chronicistas—they're WORTH IT.
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And THEY need to know that.
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So let's make sure they find out.
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#functionalish
#whatweneedtohear
#weneedtohear
#chronicillnessblogger
#chronicallyawesome
#chronicillness
#chronicpain
#chronicfatigue
#chronicmigraine
#fibromyalgia
#epsteinbarr
#depression
#insomnia
#invisibleillness
#butyoudontlooksick
#sickandtired
#wherethetiredgirlsare
#millionsmissing
#canyouseeMEnow
#spoonie
#spooniewarrior
#myhealthjourney
#yougotthis
#strongerthanyouthink
#courageousliving
#livingwithlimits
#abundantlife
#faithblogger

//NEW SERIES// . This is for you, spouses and friends, coworkers and caregivers, doctors and other minor gods, family members, casual acquaintances, and the entire general public: . A two-week chronic illness PSA just for YOU. . Because we know you don't understand what's happened to the person you used to know. . Because we know you have no frame of reference for chronic illness and how it differs from its acute counterparts. . Because we know most of you truly desire to say something helpful and encouraging, but you have NO EARTHLY IDEA what that might be. . And because this darn chronic illness thing doesn't come with so much as a flyer, let alone a handbook. . So for the next two weeks, I'm going to draw back the protective curtain just for YOU and reveal to you the things the chronically ill person in YOUR life wishes they could tell you, but can't because it's JUST. TOO. VULNERABLE. . Because TBH, they've been desperate to hear these things—some of which they didn't even know they needed to hear—from you and from others for a LONG TIME. . But they don't want to have to ASK for it. . Nor do many of them really even know HOW. . . . So, beginning tomorrow, I'M going to be the vulnerable one in their place— . and I'm going to take some time to tell you . #whatweneedtohear . . . . I hope you'll join us—and I hope you'll encourage others to join in and follow along. . Because these people in your life—the ones WE call Chronicistas—they're WORTH IT. . And THEY need to know that. . . . So let's make sure they find out. . . . #functionalish #whatweneedtohear #weneedtohear #chronicillnessblogger #chronicallyawesome #chronicillness #chronicpain #chronicfatigue #chronicmigraine #fibromyalgia #epsteinbarr #depression #insomnia #invisibleillness #butyoudontlooksick #sickandtired #wherethetiredgirlsare #millionsmissing #canyouseeMEnow #spoonie #spooniewarrior #myhealthjourney #yougotthis #strongerthanyouthink #courageousliving #livingwithlimits #abundantlife #faithblogger - 12 hours ago

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I’m one stuffed girly. I’ve been out for lunch today, and had a wonderful cooked dinner, I’ve eaten well all weekend, why? Well, starting tomorrow I’m starting the 5;2 diet. For those who don’t know, this diet is when you fast for two days out of the week, and the rest you eat healthy, small amounts. My weight has been creeping up, medications and not being able to exercise due to ill health doesn’t help this matter, but I can’t change that part. I can’t afford to put on more weight, I can’t deal with more health issues, and if I can do something to help myself, I will. I have 10 weeks from Monday until my next weigh in at the doctors, and I hope to have lost some weight by then. Hopefully I can then keep it off, and I can start feeling the benefits of it. I’m not trying to lose a bunch of weight, nor do I have unrealistic expectations, but to lose a stone or even half a stone in the 10 weeks will be such an achievement. I’ve weighed myself today, and come tomorrow, I will not weigh myself again until my weigh in at the doctors. I’ll update ya all with how I’m getting on later. Wish me luck! #chronicillnesswarrior #chronicfatiguesyndrome #myalgicencephalomyelitis #pwcf #pwme #mecfswarrior #fibromyalgia #lymedisease #chronicpainwarrior #chronicjointpain #chronicbackpain #chronicpelvicpainsyndrome #endometriosis #muscleweakness #muscledisorder #ms #weightgainjourney #weightlossjourney #52diet #spoonielife #millionsmissing #butyoudontlooksick

I’m one stuffed girly. I’ve been out for lunch today, and had a wonderful cooked dinner, I’ve eaten well all weekend, why? Well, starting tomorrow I’m starting the 5;2 diet. For those who don’t know, this diet is when you fast for two days out of the week, and the rest you eat healthy, small amounts. My weight has been creeping up, medications and not being able to exercise due to ill health doesn’t help this matter, but I can’t change that part. I can’t afford to put on more weight, I can’t deal with more health issues, and if I can do something to help myself, I will. I have 10 weeks from Monday until my next weigh in at the doctors, and I hope to have lost some weight by then. Hopefully I can then keep it off, and I can start feeling the benefits of it. I’m not trying to lose a bunch of weight, nor do I have unrealistic expectations, but to lose a stone or even half a stone in the 10 weeks will be such an achievement. I’ve weighed myself today, and come tomorrow, I will not weigh myself again until my weigh in at the doctors. I’ll update ya all with how I’m getting on later. Wish me luck! #chronicillnesswarrior #chronicfatiguesyndrome #myalgicencephalomyelitis #pwcf #pwme #mecfswarrior #fibromyalgia #lymedisease #chronicpainwarrior #chronicjointpain #chronicbackpain #chronicpelvicpainsyndrome #endometriosis #muscleweakness #muscledisorder #ms #weightgainjourney #weightlossjourney #52diet #spoonielife #millionsmissing #butyoudontlooksick - 12 hours ago

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I’ve not done much today, I haven’t been feeling great, many different reasons and everything was a bit much today. I took time out to just have a me day. Chilling out, being calm and taking a day just to be thankful for what I do have in life. But it’s finally really hit me, the diet starts tomorrow. I’ve started a diet before now and just not had the will power to see it through, I just gave up. This time has to be different. I have to keep going with it, I can’t just give in. Weight gain through being unwell sucks, and I’ve gotten very upset about it before now, but I can’t allow myself to do that, the illness is not my fault. It’s just something that happens. We have to try and stay positive, though that is way easier said than done. This time I need to prove to myself, not anyone else, but to prove to me I can do this. I can stick at something and I can help myself in some way. It’s not going to be easy, but hopefully it’ll be so worth it. Last cup of tea with a biscuit, bed and then here we go- the weight loss journey begins. 💪 #chronicillnesswarrior #chronicfatiguesyndrome #myalgicencephalomyelitis #pwcf #pwme #mecfswarrior #fibromyalgia #chronicpainwarrior #fibropain #chronicjointpain #chronicbackpain #chronicpelvicpainsyndrome #endometriosisawareness #endopainsucks #muscleweakness #ms #disabilityawareness #disabled #homebound #spoonielife #millionsmissing #weightgainjourney #weightlossjourney #herewego #wishmeluckbitches

I’ve not done much today, I haven’t been feeling great, many different reasons and everything was a bit much today. I took time out to just have a me day. Chilling out, being calm and taking a day just to be thankful for what I do have in life. But it’s finally really hit me, the diet starts tomorrow. I’ve started a diet before now and just not had the will power to see it through, I just gave up. This time has to be different. I have to keep going with it, I can’t just give in. Weight gain through being unwell sucks, and I’ve gotten very upset about it before now, but I can’t allow myself to do that, the illness is not my fault. It’s just something that happens. We have to try and stay positive, though that is way easier said than done. This time I need to prove to myself, not anyone else, but to prove to me I can do this. I can stick at something and I can help myself in some way. It’s not going to be easy, but hopefully it’ll be so worth it. Last cup of tea with a biscuit, bed and then here we go- the weight loss journey begins. 💪 #chronicillnesswarrior #chronicfatiguesyndrome #myalgicencephalomyelitis #pwcf #pwme #mecfswarrior #fibromyalgia #chronicpainwarrior #fibropain #chronicjointpain #chronicbackpain #chronicpelvicpainsyndrome #endometriosisawareness #endopainsucks #muscleweakness #ms #disabilityawareness #disabled #homebound #spoonielife #millionsmissing #weightgainjourney #weightlossjourney #herewego #wishmeluckbitches - 13 hours ago

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I'm in a #debilitating #flare probably my worst in the last 6 months. My family has rallied round to take care of me, including the #furbabies 
I'm so incredibly grateful 
#myalgicencephalomyelitisawareness #mecfs #chronicillness #spooniewarrior #chronicillnesswarrior #endometriosis #eds #myalgicencephalomyelitisawareness #millionsmissing #fibromyalgia #hypermobility #lifeafterdiagnosis #heds #endo #fibrowarrior #fibrofog #pets #pomeranian #pom #pomsofinsta #bunny #bunnylove #family #disabled #rabbitsofinstagram #love

I'm in a #debilitating #flare probably my worst in the last 6 months. My family has rallied round to take care of me, including the #furbabies I'm so incredibly grateful #myalgicencephalomyelitisawareness #mecfs #chronicillness #spooniewarrior #chronicillnesswarrior #endometriosis #eds #myalgicencephalomyelitisawareness #millionsmissing #fibromyalgia #hypermobility #lifeafterdiagnosis #heds #endo #fibrowarrior #fibrofog #pets #pomeranian #pom #pomsofinsta #bunny #bunnylove #family #disabled #rabbitsofinstagram #love - 13 hours ago

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The excitement over an appointment free week, this literally never happens! 😂

#EDSsupport #hEDSsupport #lifewithchronicillness #chronicillness #invisableillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalomyelitis #pwme #mewarrior #millionsmissing #eds #hEDS #ehlersdanlossyndrome #potssyndrome #spoonie #spoonielife #spooniewarrior #butyoudontlooksick

The excitement over an appointment free week, this literally never happens! 😂 #EDSsupport #hEDSsupport #lifewithchronicillness #chronicillness #invisableillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #cfs #cfsme #myalgicencephalomyelitis #pwme #mewarrior #millionsmissing #eds #hEDS #ehlersdanlossyndrome #potssyndrome #spoonie #spoonielife #spooniewarrior #butyoudontlooksick - 13 hours ago

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