#adrenolukeodystrophy

1,166 posts

This is a plaque I made honoring the passing of Aidan Jack Seeger. There wasn’t an appropriate time to hand it to Elisa or Bob at Aidan’s funeral. So as I was leaving I saw these 3 dudes walking down the street  I chased after them and asked them to hold the plaque an take a photo. It’s been over 5 years since Aidan has passed from #adrenolukeodystrophy #ALD and in that time The Seegers have worked tirelessly to #savetheboys getting #Aidanslaw passed in New York State. Under Aidan’s Law there is mandatory new born screening for ALD. There have been more states that have adopted the new born screening but way short of the whole country. If your state doesn’t please ask @aidanjackseegerfoundation how to get your state on board. Please support @aidanjackseegerfoundation they are fighting for nation wide testing and supporting the families battling ALD #aidanhasaposse #stopald @elisaseeger @nitalowey #aidansride

This is a plaque I made honoring the passing of Aidan Jack Seeger. There wasn’t an appropriate time to hand it to Elisa or Bob at Aidan’s funeral. So as I was leaving I saw these 3 dudes walking down the street I chased after them and asked them to hold the plaque an take a photo. It’s been over 5 years since Aidan has passed from #adrenolukeodystrophy #ALD and in that time The Seegers have worked tirelessly to #savetheboys getting #Aidanslaw passed in New York State. Under Aidan’s Law there is mandatory new born screening for ALD. There have been more states that have adopted the new born screening but way short of the whole country. If your state doesn’t please ask @aidanjackseegerfoundation how to get your state on board. Please support @aidanjackseegerfoundation they are fighting for nation wide testing and supporting the families battling ALD #aidanhasaposse #stopald @elisaseeger @nitalowey #aidansride - 3 months ago

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Shovelhead at Aidans Ride @aidanjackseegerfoundation  #motorcyclesasart #Aidansride #aidansridebrooklyn #charity #helpingothers #savetheboys #adrenolukeodystrophy #stopald #aidanhasaposse #cantberightplacerighttimeifyoudontgo @genuinemotorworks @indianlarrymotorcycles #hogs4hope #shovelhead by @buzzmatik @s&s @metzelermoto #madstorkwasthere

Shovelhead at Aidans Ride @aidanjackseegerfoundation #motorcyclesasart #Aidansride #aidansridebrooklyn #charity #helpingothers #savetheboys #adrenolukeodystrophy #stopald #aidanhasaposse #cantberightplacerighttimeifyoudontgo @genuinemotorworks @indianlarrymotorcycles #hogs4hope #shovelhead by @buzzmatik @s&s @metzelermoto #madstorkwasthere - 8 months ago

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🌟GIVE AWAY🌟 💫Two decals randomly picked must  follow us, share post, and tag two friends KCROracing . When we reach 500 followers we will announce a lucky winner!  Good Luck!  #kcro #kcroracing #keepcalmraceon #blackthunder #instagood #instagiveaway #instaracing #chevynova #novass #69nova #follow #share #nova #adrenolukeodystrophy #forever19

🌟GIVE AWAY🌟 💫Two decals randomly picked must follow us, share post, and tag two friends KCROracing . When we reach 500 followers we will announce a lucky winner! Good Luck! #kcro #kcroracing #keepcalmraceon #blackthunder #instagood #instagiveaway #instaracing #chevynova #novass #69nova #follow #share #nova #adrenolukeodystrophy #forever19 - 8 months ago

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NEEDED SOME MOTIVATION.
#REMYXO 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

NEEDED SOME MOTIVATION. #REMYXO #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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JUST SEEN YOUR DAUGHTER FROWN UP AND SAY, "I WANNA GO OUTSIDE" & I ALMOST CRUMBLED. I KNOW EVERYTHING HAPPENS FOR A REASON BUT I NEED YOU TO SHOW ME THE REASON BRO. @cameron_48219 
#ifdeathwasntpromisedlifewouldntbeprecious #ifdeathwasntpromisedlifewouldntbesoprecious 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

JUST SEEN YOUR DAUGHTER FROWN UP AND SAY, "I WANNA GO OUTSIDE" & I ALMOST CRUMBLED. I KNOW EVERYTHING HAPPENS FOR A REASON BUT I NEED YOU TO SHOW ME THE REASON BRO. @cameron_48219 #ifdeathwasntpromisedlifewouldntbeprecious #ifdeathwasntpromisedlifewouldntbesoprecious #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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OUR MEN CANT SURVIVE WITHOUT OUR WOMEN.

#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

OUR MEN CANT SURVIVE WITHOUT OUR WOMEN. #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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GET DEAD OVER MY FAMILY #SALIK @blue_strip_meek 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

GET DEAD OVER MY FAMILY #SALIK @blue_strip_meek #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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WTF NICCAZ TOOK @foelifetone TO. SHIT CRAZY AF. NO MATTER WHAT HE WAS DOING HE SHOWED, LOVE, RESPECT & NEVER ACTED FUNNY. YOU CANT HAVE A GOOD HEART & LIVE LONG.

#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

WTF NICCAZ TOOK @foelifetone TO. SHIT CRAZY AF. NO MATTER WHAT HE WAS DOING HE SHOWED, LOVE, RESPECT & NEVER ACTED FUNNY. YOU CANT HAVE A GOOD HEART & LIVE LONG. #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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CAN I GET THAT SALMON BRO? @cameron_48219 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

CAN I GET THAT SALMON BRO? @cameron_48219 #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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@cameron_48219 I DIDN'T EVEN WANT TO POST THIS BECAUSE IM STILL IN DISBELIEF. THIS $HIT HERE HURT. IM NOT GONE QUESTION, I JUST KNOW EVERYTHING HAPPENS FOR A REASON. #ifdeathwasntpromisedlifewouldntbesoprecious #ifdeathwasntpromisedlifewouldntbeprecious

#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

@cameron_48219 I DIDN'T EVEN WANT TO POST THIS BECAUSE IM STILL IN DISBELIEF. THIS $HIT HERE HURT. IM NOT GONE QUESTION, I JUST KNOW EVERYTHING HAPPENS FOR A REASON. #ifdeathwasntpromisedlifewouldntbesoprecious #ifdeathwasntpromisedlifewouldntbeprecious #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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FOR THE HOOD, IN THE HOOD, SUPPORT THE HOOD. BE GREAT MY NICCAZ @realniggasneverfold_
@wavy.dolo #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

FOR THE HOOD, IN THE HOOD, SUPPORT THE HOOD. BE GREAT MY NICCAZ @realniggasneverfold_ @wavy.dolo #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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LIL KREATURE #KHALEB 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

LIL KREATURE #KHALEB #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 8 months ago

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COOKING EVERYTHING I DON'T EAT.
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

COOKING EVERYTHING I DON'T EAT. #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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#koreanfood #korean #SMASH
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

#koreanfood #korean #SMASH #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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HER DAD SAID, "DON'T GET DEAD"! @kimoriwilliams MY LIL KAREBEAR #KIMORI 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

HER DAD SAID, "DON'T GET DEAD"! @kimoriwilliams MY LIL KAREBEAR #KIMORI #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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HE SWEAR LIL KREATURE #KHALEB 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

HE SWEAR LIL KREATURE #KHALEB #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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HAPPY BIRTHDAY A

#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

HAPPY BIRTHDAY A #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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IM ON........THE ROAD. #DOLO
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

IM ON........THE ROAD. #DOLO #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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MY LIL KREATURE #KHALEB SWEAR HE GOT GRIPS. @bulldogsbasketball313 
#BASKETBALL 
#adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald  #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN

MY LIL KREATURE #KHALEB SWEAR HE GOT GRIPS. @bulldogsbasketball313 #BASKETBALL #adrenolukeodystrophy #adrenoleukodystrophy #ald #cureald   #BLACKWALLSTREET #mdot #mdotgram #HoodVillanz #detroit #LetItWoop #Doey #Doughy #HVMDOT #HOODVILLANMDOT #MOORS #moor #MELANIN - 9 months ago

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