#blendeddiet

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We are all about feeding real food to tube fed people. Why do they have to be on a liquid diet just because they have a feeding tube?? On Mondays we will be sharing some blending meal ideas and we’d love to hear from you! Your blend may be featured and help someone else.

Here’s today’s blend: 
This is a batch blend and makes about 160oz and is around 825 calories per day (1.2 cal per ml)
6 chicken breasts
6 sweet potatoes
7 cups of cooked grain blend (dry ingredients: 1c brown rice, 1/2c oats, 1/2c quinoa with one can of full fat coconut milk)
1 package of frozen avocados
1c hemp seeds
6tbs MCT oil 
#tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal #tubefeedingnutrition #blendeddietfortubies #tubefedbaby #tubefedlife #chronicillness #feedingtubelife
#tubielife

We are all about feeding real food to tube fed people. Why do they have to be on a liquid diet just because they have a feeding tube?? On Mondays we will be sharing some blending meal ideas and we’d love to hear from you! Your blend may be featured and help someone else. Here’s today’s blend: This is a batch blend and makes about 160oz and is around 825 calories per day (1.2 cal per ml) 6 chicken breasts 6 sweet potatoes 7 cups of cooked grain blend (dry ingredients: 1c brown rice, 1/2c oats, 1/2c quinoa with one can of full fat coconut milk) 1 package of frozen avocados 1c hemp seeds 6tbs MCT oil #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal #tubefeedingnutrition #blendeddietfortubies #tubefedbaby #tubefedlife #chronicillness #feedingtubelife #tubielife - 4 hours ago

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Getting the family out of the house today. We went to an indoor climbing  gym. 🧗‍♀️ Grateful for an easy healthy option for everyone!
Real food
Shelf stable
Nutrient dense
Now covered by most insurances. 
Check our our stories for more pics! 
#tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #dohardthings #backpackingfood #mealreplacementshake #highfiber #proteinsmoothie #smoothiebowl #veganbreakfast #plantbaseddiet #gastroparesis #crohnsdisease #oralcancer #headandneckcancer #cysticfibrosis #chronicillness #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #forceofnature

Getting the family out of the house today. We went to an indoor climbing gym. 🧗‍♀️ Grateful for an easy healthy option for everyone! Real food Shelf stable Nutrient dense Now covered by most insurances. Check our our stories for more pics! #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #dohardthings #backpackingfood #mealreplacementshake #highfiber #proteinsmoothie #smoothiebowl #veganbreakfast #plantbaseddiet #gastroparesis #crohnsdisease #oralcancer #headandneckcancer #cysticfibrosis #chronicillness #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #forceofnature - 4 hours ago

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Had a hospital stay as my lovely little tubie had surgery over the weekend. Didn’t manage to have many slimming world meals in the hospital but made some #synfree tomato soup for lunch today now we are home! 
The hospital pureed some meals for us which I could mix with milk and give to my tubie which was fantastic. 
I’ve also blended some apricots and prune juice to help her with the side effects of the medication! 
#onplan #sw #swuk #slimmingworld #slimmingworlduk #familyfood #familyfeasts #healthyfood #weightlossjourney #delicious #food #foodlover #swfamilyuk #fakeaway #tubie #tubielife #blendeddiet #tubefedbaby #feedingtubeawarenessweek2020 #gastrostomy #gtubebaby #blendeddietfortubies

Had a hospital stay as my lovely little tubie had surgery over the weekend. Didn’t manage to have many slimming world meals in the hospital but made some #synfree tomato soup for lunch today now we are home! The hospital pureed some meals for us which I could mix with milk and give to my tubie which was fantastic. I’ve also blended some apricots and prune juice to help her with the side effects of the medication! #onplan #sw #swuk #slimmingworld #slimmingworlduk #familyfood #familyfeasts #healthyfood #weightlossjourney #delicious #food #foodlover #swfamilyuk #fakeaway #tubie #tubielife #blendeddiet #tubefedbaby #feedingtubeawarenessweek2020 #gastrostomy #gtubebaby #blendeddietfortubies - 17 hours ago

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Today’s breakfast is a delicious green smoothie with avocado, spinach, banana and a blend of organic flax, sunflower, pumpkin, sesame seeds and goji berries. #cutietubie #blendeddiet, #blendeddietfortubies #healthystarttotheday #greensmoothie #greensmoothies

Today’s breakfast is a delicious green smoothie with avocado, spinach, banana and a blend of organic flax, sunflower, pumpkin, sesame seeds and goji berries. #cutietubie #blendeddiet , #blendeddietfortubies #healthystarttotheday #greensmoothie #greensmoothies - 20 hours ago

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𝐖𝐞𝐞𝐤 𝟐 🏠𝐇𝐨𝐦𝐞 𝐞𝐧𝐭𝐞𝐫𝐚𝐥 𝐟𝐞𝐞𝐝𝐢𝐧𝐠 (𝐇𝐄𝐅) and 𝐛𝐥𝐞𝐧𝐝𝐞𝐝 𝐝𝐢𝐞𝐭𝐬 (𝐁𝐃) - There has been an increased use of liquidised food for 𝐠𝐚𝐬𝐭𝐫𝐨𝐬𝐭𝐨𝐦𝐲 𝐭𝐮𝐛𝐞 𝐟𝐞𝐞𝐝𝐢𝐧𝐠 in both children and adults. This is not exactly advocated as it is 𝐮𝐧𝐝𝐞𝐫-𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡𝐞𝐝 and 𝐜𝐨𝐧𝐜𝐞𝐫𝐧𝐬 have been raised regarding safety compared to commercially prepared enteral formulas which are less labour intensive, sterile and has a clear nutritional content, etc.

However, support is provided when families inquire about it and a thorough 𝐫𝐢𝐬𝐤 𝐚𝐬𝐬𝐞𝐬𝐬𝐦𝐞𝐧𝐭 (food hygiene, storage, education on a healthy balanced diet, etc.) is done.

It was interesting to see the team working on 𝐡𝐢𝐠𝐡 𝐜𝐚𝐥𝐨𝐫𝐢𝐞+𝐥𝐨𝐰 𝐯𝐨𝐥𝐮𝐦𝐞 𝐫𝐞𝐜𝐢𝐩𝐞𝐬.🍛Foods were blended using commercial blenders and the consistency is tested to ensure that there were no blockages through the tube. Nutritional contents were then analysed 📝

I came across blended salmon, egg, avocado, toast with apple juice, blended cereal, nut butter, fruit, blended veg chicken curry with rice (can you imagine the stain😛), etc. An energy-dense liquid base such as formula milk, full-fat milk, yoghurt, juice, etc. is used to boost the nutritional content.

There is (𝐚𝐧𝐞𝐜𝐝𝐨𝐭𝐚𝐥) 𝐞𝐯𝐢𝐝𝐞𝐧𝐜𝐞 suggesting:
🔅𝐢𝐦𝐩𝐫𝐨𝐯𝐞𝐦𝐞𝐧𝐭 𝐢𝐧 𝐬𝐲𝐦𝐩𝐭𝐨𝐦𝐬 𝐨𝐟 𝐯𝐨𝐦𝐢𝐭𝐢𝐧𝐠, 𝐫𝐞𝐟𝐥𝐮𝐱 𝐚𝐧𝐝 𝐛𝐨𝐰𝐞𝐥 𝐡𝐚𝐛𝐢𝐭𝐬 – possible differences in food vs. formulas on the gut microbiome/digestion?
🔅𝐒𝐨𝐜𝐢𝐚𝐥 𝐚𝐧𝐝 𝐞𝐦𝐨𝐭𝐢𝐨𝐧𝐚𝐥 𝐛𝐞𝐧𝐞𝐟𝐢𝐭𝐬 – “normalises” the tube feeding experience and enables parents to be more involved in food prep for their child
🔅𝐒𝐨𝐦𝐞 𝐩𝐞𝐨𝐩𝐥𝐞 𝐚𝐫𝐞 𝐚𝐛𝐥𝐞 𝐭𝐨 𝐭𝐚𝐬𝐭𝐞 𝐭𝐡𝐞 𝐟𝐨𝐨𝐝𝐬 𝐭𝐡𝐚𝐭 𝐚𝐫𝐞 𝐟𝐞𝐝 𝐭𝐡𝐫𝐨𝐮𝐠𝐡 𝐭𝐡𝐞 𝐬𝐭𝐨𝐦𝐚𝐜𝐡 - possible greater interest in food?
❗️Note that there is 𝐬𝐭𝐢𝐥𝐥 𝐚 𝐥𝐨𝐭 𝐨𝐟 𝐜𝐨𝐧𝐬𝐢𝐝𝐞𝐫𝐚𝐭𝐢𝐨𝐧𝐬 e.g. education on a healthy balanced diet, family/school support, hygiene, price of blenders, practicalities when travelling, using a feeding pump, etc. However so, it’s important that we support individuals with whatever works best for them - that’s my week 2 done ✅

#blendeddiet #rd2be #rd2b #dietetics #student #placement #futuredietitian

𝐖𝐞𝐞𝐤 𝟐 🏠𝐇𝐨𝐦𝐞 𝐞𝐧𝐭𝐞𝐫𝐚𝐥 𝐟𝐞𝐞𝐝𝐢𝐧𝐠 (𝐇𝐄𝐅) and 𝐛𝐥𝐞𝐧𝐝𝐞𝐝 𝐝𝐢𝐞𝐭𝐬 (𝐁𝐃) - There has been an increased use of liquidised food for 𝐠𝐚𝐬𝐭𝐫𝐨𝐬𝐭𝐨𝐦𝐲 𝐭𝐮𝐛𝐞 𝐟𝐞𝐞𝐝𝐢𝐧𝐠 in both children and adults. This is not exactly advocated as it is 𝐮𝐧𝐝𝐞𝐫-𝐫𝐞𝐬𝐞𝐚𝐫𝐜𝐡𝐞𝐝 and 𝐜𝐨𝐧𝐜𝐞𝐫𝐧𝐬 have been raised regarding safety compared to commercially prepared enteral formulas which are less labour intensive, sterile and has a clear nutritional content, etc. However, support is provided when families inquire about it and a thorough 𝐫𝐢𝐬𝐤 𝐚𝐬𝐬𝐞𝐬𝐬𝐦𝐞𝐧𝐭 (food hygiene, storage, education on a healthy balanced diet, etc.) is done. It was interesting to see the team working on 𝐡𝐢𝐠𝐡 𝐜𝐚𝐥𝐨𝐫𝐢𝐞+𝐥𝐨𝐰 𝐯𝐨𝐥𝐮𝐦𝐞 𝐫𝐞𝐜𝐢𝐩𝐞𝐬.🍛Foods were blended using commercial blenders and the consistency is tested to ensure that there were no blockages through the tube. Nutritional contents were then analysed 📝 I came across blended salmon, egg, avocado, toast with apple juice, blended cereal, nut butter, fruit, blended veg chicken curry with rice (can you imagine the stain😛), etc. An energy-dense liquid base such as formula milk, full-fat milk, yoghurt, juice, etc. is used to boost the nutritional content. There is (𝐚𝐧𝐞𝐜𝐝𝐨𝐭𝐚𝐥) 𝐞𝐯𝐢𝐝𝐞𝐧𝐜𝐞 suggesting: 🔅𝐢𝐦𝐩𝐫𝐨𝐯𝐞𝐦𝐞𝐧𝐭 𝐢𝐧 𝐬𝐲𝐦𝐩𝐭𝐨𝐦𝐬 𝐨𝐟 𝐯𝐨𝐦𝐢𝐭𝐢𝐧𝐠, 𝐫𝐞𝐟𝐥𝐮𝐱 𝐚𝐧𝐝 𝐛𝐨𝐰𝐞𝐥 𝐡𝐚𝐛𝐢𝐭𝐬 – possible differences in food vs. formulas on the gut microbiome/digestion? 🔅𝐒𝐨𝐜𝐢𝐚𝐥 𝐚𝐧𝐝 𝐞𝐦𝐨𝐭𝐢𝐨𝐧𝐚𝐥 𝐛𝐞𝐧𝐞𝐟𝐢𝐭𝐬 – “normalises” the tube feeding experience and enables parents to be more involved in food prep for their child 🔅𝐒𝐨𝐦𝐞 𝐩𝐞𝐨𝐩𝐥𝐞 𝐚𝐫𝐞 𝐚𝐛𝐥𝐞 𝐭𝐨 𝐭𝐚𝐬𝐭𝐞 𝐭𝐡𝐞 𝐟𝐨𝐨𝐝𝐬 𝐭𝐡𝐚𝐭 𝐚𝐫𝐞 𝐟𝐞𝐝 𝐭𝐡𝐫𝐨𝐮𝐠𝐡 𝐭𝐡𝐞 𝐬𝐭𝐨𝐦𝐚𝐜𝐡 - possible greater interest in food? ❗️Note that there is 𝐬𝐭𝐢𝐥𝐥 𝐚 𝐥𝐨𝐭 𝐨𝐟 𝐜𝐨𝐧𝐬𝐢𝐝𝐞𝐫𝐚𝐭𝐢𝐨𝐧𝐬 e.g. education on a healthy balanced diet, family/school support, hygiene, price of blenders, practicalities when travelling, using a feeding pump, etc. However so, it’s important that we support individuals with whatever works best for them - that’s my week 2 done ✅ #blendeddiet #rd2be #rd2b #dietetics #student #placement #futuredietitian - 1 day ago

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It’s not easy getting out and trying to live a typical life with a feeding-tube. 
We hope to make it easier for you!

Whole Story Meals was formulated specifically for on the go life.  Shelf stable, light weight, nutrient dense. 
#tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #dohardthings #backpackingfood #mealreplacementshake #highfiber #proteinsmoothie #smoothiebowl #veganbreakfast #plantbaseddiet #gastroparesis #crohnsdisease #oralcancer #headandneckcancer #cysticfibrosis #chronicillness #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #forceofnature

It’s not easy getting out and trying to live a typical life with a feeding-tube. We hope to make it easier for you! Whole Story Meals was formulated specifically for on the go life. Shelf stable, light weight, nutrient dense. #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #dohardthings #backpackingfood #mealreplacementshake #highfiber #proteinsmoothie #smoothiebowl #veganbreakfast #plantbaseddiet #gastroparesis #crohnsdisease #oralcancer #headandneckcancer #cysticfibrosis #chronicillness #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #forceofnature - 1 day ago

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Started my day today after a late night working with a Strawberry shake blended with a banana.. What a kick start to Sunday. #sundayfunday #sunday #thestart #starttotheday #kickstarter #kickstart #dailykickstart #banana #strawberrys #blended #blendedbanana #blendeddiet #shakeitoff #strawberryshake #strawberryshakes #strawberry🍓 #working #latenights @herbalife

Started my day today after a late night working with a Strawberry shake blended with a banana.. What a kick start to Sunday. #sundayfunday #sunday #thestart #starttotheday #kickstarter #kickstart #dailykickstart #banana #strawberrys #blended #blendedbanana #blendeddiet #shakeitoff #strawberryshake #strawberryshakes #strawberry 🍓 #working #latenights @herbalife - 1 day ago

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Breakfast blends. 
#yumandyayeveryday 
#yummy 
#yumandyay 
#blueberry 
#banana 
#readybrek 
#carrot 
#cinamon 
#fullfatmilk 
#breakfastblends 
#breakfast 
#blend 
#blends 
#blendeddiet 
#tubie 
#tubielife 
#tubiebaby 
#tubiekid 
#tubiemum

Breakfast blends. #yumandyayeveryday #yummy #yumandyay #blueberry #banana #readybrek #carrot #cinamon #fullfatmilk #breakfastblends #breakfast #blend #blends #blendeddiet #tubie #tubielife #tubiebaby #tubiekid #tubiemum - 2 days ago

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Blends made today .
.
.
#yummy 
#blends 
#blender 
#blendeddiet 
#blends 
#pescatarian 
#tubiekid 
#tubiestyle 
#tubie 
#tubiebaby 
#tubielife 
#tubiemum 
#prepared 
#veryorange 
#colourful

Blends made today . . . #yummy #blends #blender #blendeddiet #blends #pescatarian #tubiekid #tubiestyle #tubie #tubiebaby #tubielife #tubiemum #prepared #veryorange #colourful - 2 days ago

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#blendeddiet #ketogenicdiet for #epilepsy 
Sebetulnya pisang ga bisa untuk keto diet, karena karbo nya tinggi, tapiii karena hanya 1 buah per hari, dan gak ada lagi sumber carb nya ya its okay ya,

Ini semua masing masing, harus ditimbang lagi
Disesuaikan porsi dan rasio nya, dan  ada bbrp tambahan untuk variasi rasa,

Karena avvan masih makan bubur.. ini semua diblender sampai halus..
Jadi bagaimana progresnya #ketogenicdietforepilepsy ?
Worth to try? 
It's really worth it. .
.
Ps: ada yang tanya.. jadi sebenarnya metode pengobatan apa yang saya lakukan demi kesehatan Avvan?

Semua yang tidak merusak badannya... tidak menentang Tuhan.. dan bisa sanggup saya lakukan.. akan saya lakukan.

Baik itu pengobatan medis formal dengan obat farmasi, pengobatan herbal, terapi seperti keto diet mengatur asupan makanannya, 
Selama itu positif membuat kejangnya berkurang. Akan saya lakukan.. dan pastinya dengan penuh cinta kasih. ❤️

#blendeddiet #ketogenicdiet for #epilepsy Sebetulnya pisang ga bisa untuk keto diet, karena karbo nya tinggi, tapiii karena hanya 1 buah per hari, dan gak ada lagi sumber carb nya ya its okay ya, Ini semua masing masing, harus ditimbang lagi Disesuaikan porsi dan rasio nya, dan ada bbrp tambahan untuk variasi rasa, Karena avvan masih makan bubur.. ini semua diblender sampai halus.. Jadi bagaimana progresnya #ketogenicdietforepilepsy ? Worth to try? It's really worth it. . . Ps: ada yang tanya.. jadi sebenarnya metode pengobatan apa yang saya lakukan demi kesehatan Avvan? Semua yang tidak merusak badannya... tidak menentang Tuhan.. dan bisa sanggup saya lakukan.. akan saya lakukan. Baik itu pengobatan medis formal dengan obat farmasi, pengobatan herbal, terapi seperti keto diet mengatur asupan makanannya, Selama itu positif membuat kejangnya berkurang. Akan saya lakukan.. dan pastinya dengan penuh cinta kasih. ❤️ - 2 days ago

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We have THREE winners! Check your emails and congrats to @ninadetox for being the IG tag winner!! #tubefeedingawarenessweek #tubefeedingawareness #feedingtube #feedingtubeawareness #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal #tubefeedingnutrition #blendeddietfortubies #tubefedbaby #tubefedlife #chronicillness #feedingtubelife

We have THREE winners! Check your emails and congrats to @ninadetox for being the IG tag winner!! #tubefeedingawarenessweek #tubefeedingawareness #feedingtube #feedingtubeawareness #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal #tubefeedingnutrition #blendeddietfortubies #tubefedbaby #tubefedlife #chronicillness #feedingtubelife - 2 days ago

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@tubieamazing is a rock star when it comes to living her best life! We can not wait to see where your tenacity and drive take you. Go look at @tubieamazing stories to learn more about Superior Mesenteric Artery Syndrome.  1 in 3 diagnosed on autopsy.  0.013% is not too rare to care.  #smas #smasawareness #superiormesentericarterysyndrome #tubieamazing #nutcrackersyndrome #ncs #tubefeedingawarenessweek #tubefeedingawareness #feedingtube #feedingtubeawareness #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal

@tubieamazing is a rock star when it comes to living her best life! We can not wait to see where your tenacity and drive take you. Go look at @tubieamazing stories to learn more about Superior Mesenteric Artery Syndrome. 1 in 3 diagnosed on autopsy. 0.013% is not too rare to care. #smas #smasawareness #superiormesentericarterysyndrome #tubieamazing #nutcrackersyndrome #ncs #tubefeedingawarenessweek #tubefeedingawareness #feedingtube #feedingtubeawareness #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal - 2 days ago

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I'm very late to the party here but it's been lovely reading everybody's posts this week for #feedingtubeawareness week and I wanted to share a little of Jamie's feeding journey. Jamie was initially fed  through an NG tube. I hated the NG so much, it was so tricky to put it in at home and there was constant fear of it ending up in Jamie's lungs.  Before every feed or medication, we had to draw back fluid from the tube and test its PH to make sure the contents were from the tummy. At 6 weeks, Jamie decided he had enough of his tube, he pulled it out one day and started taking all of his milk orally for us. However, this only lasted for 2 months and due to Jamie's severe reflux he became 100% orally aversive over time and it became unsafe to feed him. In Jan 2019 he was fitted with a mic-key button. This is different to the traditional peg that a lot of people are used to because the attachment can be taken off and it is a lot more flush. We love it! Jamie's peg site needs to be cleaned and dressed every day, once a week the water in the balloon inside the button, which holds it in place in his tummy, needs to be changed and every 3 months I have to replace the button. Seeing as Jamie went through a phase of pushing his button out most days, this no longer phases me! Like many children who have buttons and pegs, Jamie does eat orally also. His button is a life safer however, as when J is not himself or ill, his feeding is the first skill to go. His button has allowed him to thrive. He now gets blended food into his tummy via the tube, along with milk and meds. Having a blended diet has been a game changer for Jamie in terms of his reflux and weight and it makes me so happy to be able to cook nutritious food for him, as any mother should be able to. 90% of people on Jamie's team have been so supportive of Jamie's blended diet but it is surprising the lack of awareness there is about it and I've been shocked at a couple of comments we have recieved about his blended diet from health care professionals. I always love when friends ask me questions about his tube, it is a part of Jamie, we would be lost without it and I love explaining to people how it works! ❤❤

I'm very late to the party here but it's been lovely reading everybody's posts this week for #feedingtubeawareness week and I wanted to share a little of Jamie's feeding journey. Jamie was initially fed through an NG tube. I hated the NG so much, it was so tricky to put it in at home and there was constant fear of it ending up in Jamie's lungs. Before every feed or medication, we had to draw back fluid from the tube and test its PH to make sure the contents were from the tummy. At 6 weeks, Jamie decided he had enough of his tube, he pulled it out one day and started taking all of his milk orally for us. However, this only lasted for 2 months and due to Jamie's severe reflux he became 100% orally aversive over time and it became unsafe to feed him. In Jan 2019 he was fitted with a mic-key button. This is different to the traditional peg that a lot of people are used to because the attachment can be taken off and it is a lot more flush. We love it! Jamie's peg site needs to be cleaned and dressed every day, once a week the water in the balloon inside the button, which holds it in place in his tummy, needs to be changed and every 3 months I have to replace the button. Seeing as Jamie went through a phase of pushing his button out most days, this no longer phases me! Like many children who have buttons and pegs, Jamie does eat orally also. His button is a life safer however, as when J is not himself or ill, his feeding is the first skill to go. His button has allowed him to thrive. He now gets blended food into his tummy via the tube, along with milk and meds. Having a blended diet has been a game changer for Jamie in terms of his reflux and weight and it makes me so happy to be able to cook nutritious food for him, as any mother should be able to. 90% of people on Jamie's team have been so supportive of Jamie's blended diet but it is surprising the lack of awareness there is about it and I've been shocked at a couple of comments we have recieved about his blended diet from health care professionals. I always love when friends ask me questions about his tube, it is a part of Jamie, we would be lost without it and I love explaining to people how it works! ❤❤ - 2 days ago

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I personally love a good food pun on my feeding tube accessories, so here's a good pun on a feeding tube accessory that I hope YOU like, too. :) It's our medium insulated feeding pump bag cover with this adorable embroidered design on the front and a fun taco print fabric on the back.⁣
Available now. Link in bio.⁣
⁣
#tubielife  #feedingtube  #gtube  #medicalaccessories #insulatedfeedingtubebags #insulatedfeedingpumpbagcover #feedingtubeaccessories #feedingpump #feedingpumpbagcover #tubefed #tubefeeding  #blendeddiet #blenderizedtubefeeding #tacosfortubies

I personally love a good food pun on my feeding tube accessories, so here's a good pun on a feeding tube accessory that I hope YOU like, too. :) It's our medium insulated feeding pump bag cover with this adorable embroidered design on the front and a fun taco print fabric on the back.⁣ Available now. Link in bio.⁣ ⁣ #tubielife #feedingtube #gtube #medicalaccessories #insulatedfeedingtubebags #insulatedfeedingpumpbagcover #feedingtubeaccessories #feedingpump #feedingpumpbagcover #tubefed #tubefeeding #blendeddiet #blenderizedtubefeeding #tacosfortubies - 2 days ago

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I’ve been having some problems with Dysphagia (swallowing/choking) lately, and then I had some dental surgery on Weds, so solid food is off the menu for the time being. 
I made a fresh baked rice pudding, because it’s less effort than heating up a tinned version - chuck it all in the oven and leave it for a couple of hours! 
It was still too bloody hard to eat though 😣. So now, this is what I’m reduced to: blending rice pudding until it’s smoother than semolina. 😬

Thankfully it still tastes fine! 
#AdultBabyFood #BlendedDiet #Dysphagia #RicePudding #BlitzedFood #FND #FunctionalNeurologicalDisorder #Spoonie #SpoonieLife #SpoonieDiet

I’ve been having some problems with Dysphagia (swallowing/choking) lately, and then I had some dental surgery on Weds, so solid food is off the menu for the time being. I made a fresh baked rice pudding, because it’s less effort than heating up a tinned version - chuck it all in the oven and leave it for a couple of hours! It was still too bloody hard to eat though 😣. So now, this is what I’m reduced to: blending rice pudding until it’s smoother than semolina. 😬 Thankfully it still tastes fine! #AdultBabyFood #BlendedDiet #Dysphagia #RicePudding #BlitzedFood #FND #FunctionalNeurologicalDisorder #Spoonie #SpoonieLife #SpoonieDiet - 3 days ago

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“No one was creating real food for people with feeding tubes. There weren’t resources so it was literally just a shot in the dark every day to try to blend things that would give me protein, fat, and carbs to sustain my body and help me thrive.” No resources or guidance would seem like an issue to most, but not for @feedingtube.fitness. Hannah was determined to create a better, healthier lifestyle for herself. Link in bio for full story.

#Blendbassador #FeedingTubeAwareness2020 #FeedingTubeAwareness #TubeFeeding #BlendedDiet #WholeFoodBlends #KitchenBlends #BlendedMeal #FeedingTubeFitness #TubieLife

“No one was creating real food for people with feeding tubes. There weren’t resources so it was literally just a shot in the dark every day to try to blend things that would give me protein, fat, and carbs to sustain my body and help me thrive.” No resources or guidance would seem like an issue to most, but not for @feedingtube.fitness. Hannah was determined to create a better, healthier lifestyle for herself. Link in bio for full story. #Blendbassador #FeedingTubeAwareness2020 #FeedingTubeAwareness #TubeFeeding #BlendedDiet #WholeFoodBlends #KitchenBlends #BlendedMeal #FeedingTubeFitness #TubieLife - 3 days ago

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#feedingtuneawarenessweek • Figuring it out
.
How to change her button (the tube that's in her stomach). We learned this one on our own, in an emergency situation because the hospital hadn't trained us when she got it.  How to clean & take care of her button. How to attach the extension cord to feed her. How to use her feeding pump. How to prevent spills, keeping the extension cord attached to her pump. How to unclog the feeding bag or extension cord.  Creating & blending meals to keep up with her required calories per day.  Managing illness & teething with how & what we feed her (where she's at risk for frequent vomiting). Changing from feeding pump to syringes.  Guessing how fast we should be feeding her.  Sticking to a feeding routine: how often she eats, and what time.
.
It seems like we never stop learning- what parent does?  Although I never imagined needing to learn this, I'm proud we've been able to manage and figure out what works for us and Em. Mostly I'm proud of how far she's come and how much she's grown. #thankstothetube #feedingtube #blendeddiet #growbabygrow

#feedingtuneawarenessweek • Figuring it out . How to change her button (the tube that's in her stomach). We learned this one on our own, in an emergency situation because the hospital hadn't trained us when she got it. How to clean & take care of her button. How to attach the extension cord to feed her. How to use her feeding pump. How to prevent spills, keeping the extension cord attached to her pump. How to unclog the feeding bag or extension cord. Creating & blending meals to keep up with her required calories per day. Managing illness & teething with how & what we feed her (where she's at risk for frequent vomiting). Changing from feeding pump to syringes. Guessing how fast we should be feeding her. Sticking to a feeding routine: how often she eats, and what time. . It seems like we never stop learning- what parent does? Although I never imagined needing to learn this, I'm proud we've been able to manage and figure out what works for us and Em. Mostly I'm proud of how far she's come and how much she's grown. #thankstothetube #feedingtube #blendeddiet #growbabygrow - 3 days ago

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As it's been Feeding Tube Awareness Week. I thought I'd share a picture of Alannah having her tea, through her Feeding Tube (roast pork and veg). Alannah is unable to drink orally but can just about eat smooth blended food. When Alannah is unwell or tired, like this evening, it goes through her tube. #feedingtubeawareness #lovemytubie #blendeddiet #keepsheralive #swan #Alannahgeddon

As it's been Feeding Tube Awareness Week. I thought I'd share a picture of Alannah having her tea, through her Feeding Tube (roast pork and veg). Alannah is unable to drink orally but can just about eat smooth blended food. When Alannah is unwell or tired, like this evening, it goes through her tube. #feedingtubeawareness #lovemytubie #blendeddiet #keepsheralive #swan #Alannahgeddon - 3 days ago

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I lied about the two post yesterday. I’ve been having my own rare disease issues and couldn’t manage. Forgive me. I’ll do two posts today for sure. This one tho is just a cute picture of a shirt I made with Dad trying to get #Warriorbee to smile. #cutiepatubie Through the past 4 years we’ve had a lot of ups and down with the feeding tube, remember the time he had two stomas for no reason?! 😫 But honestly he wouldn’t be so happy and healthy without. The good outweighs the bad. Stay tuned for the blended diet bonus post coming up later today *Im making supplies for it now*

I lied about the two post yesterday. I’ve been having my own rare disease issues and couldn’t manage. Forgive me. I’ll do two posts today for sure. This one tho is just a cute picture of a shirt I made with Dad trying to get #Warriorbee to smile. #cutiepatubie Through the past 4 years we’ve had a lot of ups and down with the feeding tube, remember the time he had two stomas for no reason?! 😫 But honestly he wouldn’t be so happy and healthy without. The good outweighs the bad. Stay tuned for the blended diet bonus post coming up later today *Im making supplies for it now* - 4 days ago

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Last day to enter the giveaway by going to linktr.ee/wholestorymeals (link in bio) to enter your email and tag some friends for extra entries! We will stop the giveaway at 5pm and pull from the entries!! #tubefeedingawarenessweek #tubefeedingawareness #feedingtube #feedingtubeawareness #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal #tubefeedingnutrition #blendeddietfortubies #tubefedbaby #tubefedlife #chronicillness #feedingtubelife

Last day to enter the giveaway by going to linktr.ee/wholestorymeals (link in bio) to enter your email and tag some friends for extra entries! We will stop the giveaway at 5pm and pull from the entries!! #tubefeedingawarenessweek #tubefeedingawareness #feedingtube #feedingtubeawareness #tubieinthewild #wholestorymeals #tubie #tubefed #tubefeeding #enteralnutrition #blenderizeddiet #blendeddiet #pureediet #dysphagia #medicallycomplex #specialneedsparent #specialneedsfamily #specialneeds #advocatelikeamother #heartbaby #specialneedsmom #specialneedschildren #realfoodfortubies #feedmereal #tubefeedingnutrition #blendeddietfortubies #tubefedbaby #tubefedlife #chronicillness #feedingtubelife - 4 days ago

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