#donate

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As the Love Some1 With GLUT1 campaign comes to a close, I have been thinking about what GLUT1 means to me.... as a parent of a child with GLUT1.

It means I am one of a small number of parents trying to navigate this world.  Not much is known and there are so many differences that it is hard, for me at least, to feel like I can get a hold of what life will look like in 5, 10, 15 or even 20 years. 
The biggest challenge I face is to not feel inadequate or like a failure when I see other patients achieving things Ella hasn't been able to.... from riding a bike to being in line with peers academically.  Also, knowing that no matter how many hours I put in to making keto masterpieces, Ella will turn her nose up meaning she has a mic-key button when others dont.  I find this harder because all Ella wants is fruit and veg.... which she used to eat all the time pre diagnosis when I felt like I was nailing this parenting malarkey! 
The gap between patients is staggering.... some are wheelchair bound fully, non verbal and fully dependant.  Others are performing in line with the peers in all areas and are looking likely to live a "typical" life. 
As a parent, I read on forums of other families struggling to come to terms with what their childs life looks like.... comparing notes and questioning why their child isnt the same as the child who does appear neurotypical. 
We all love our children with every fibre of our being and want the best life for them.... it is just hard when the research is limited due to funding and the gaps are staggering and all you want to do, as a parent, is to provide your child with the best chances! 
That being said, should you be able to find a spare few £'s €'s or $'s please donate to the GLUT1 Deficiency Foundation.  The more research, the more understanding, the more clarity and that will give families like mine hope for the future! ❤❤❤ #GLUT1 #glut1ds #SENParent #destinationunknown #charity #donate #family #love #rare #lovesome1withglut1 #LoveElla

As the Love Some1 With GLUT1 campaign comes to a close, I have been thinking about what GLUT1 means to me.... as a parent of a child with GLUT1. It means I am one of a small number of parents trying to navigate this world. Not much is known and there are so many differences that it is hard, for me at least, to feel like I can get a hold of what life will look like in 5, 10, 15 or even 20 years. The biggest challenge I face is to not feel inadequate or like a failure when I see other patients achieving things Ella hasn't been able to.... from riding a bike to being in line with peers academically. Also, knowing that no matter how many hours I put in to making keto masterpieces, Ella will turn her nose up meaning she has a mic-key button when others dont. I find this harder because all Ella wants is fruit and veg.... which she used to eat all the time pre diagnosis when I felt like I was nailing this parenting malarkey! The gap between patients is staggering.... some are wheelchair bound fully, non verbal and fully dependant. Others are performing in line with the peers in all areas and are looking likely to live a "typical" life. As a parent, I read on forums of other families struggling to come to terms with what their childs life looks like.... comparing notes and questioning why their child isnt the same as the child who does appear neurotypical. We all love our children with every fibre of our being and want the best life for them.... it is just hard when the research is limited due to funding and the gaps are staggering and all you want to do, as a parent, is to provide your child with the best chances! That being said, should you be able to find a spare few £'s €'s or $'s please donate to the GLUT1 Deficiency Foundation. The more research, the more understanding, the more clarity and that will give families like mine hope for the future! ❤❤❤ #GLUT1 #glut1ds #SENParent #destinationunknown #charity #donate #family #love #rare #lovesome1withglut1 #LoveElla - 17 seconds ago

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Day 49 - Queen concert last night, amazing! Taxi driving duties 🚗

#13 You Can Make Serious Gains in the Gym
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#SavetheChildren #Donate #Challenge #ChallengeYouself #Causes #Change #DoGood #Charity #FundRaising

Day 49 - Queen concert last night, amazing! Taxi driving duties 🚗 #13 You Can Make Serious Gains in the Gym . . . . . #SavetheChildren #Donate #Challenge #ChallengeYouself #Causes #Change #DoGood #Charity #FundRaising - 48 seconds ago

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https://mazatlananimalrescue.com/adoptable-dogs/

Camel
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#adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters

https://mazatlananimalrescue.com/adoptable-dogs/ Camel . . . #adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters - 58 seconds ago

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https://mazatlananimalrescue.com/adoptable-dogs/

Blackie
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#adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters

https://mazatlananimalrescue.com/adoptable-dogs/ Blackie . . . #adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters - 1 minute ago

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Our charity partner @brothersinarmsnz is launching an all-new name and look this Saturday at their beach day. They have been called Brothers and Arms for 13 years and now rebrand to something new and exciting - watch this space and head along to support them on Saturday at Kohimarama Beach!

Our charity partner @brothersinarmsnz is launching an all-new name and look this Saturday at their beach day. They have been called Brothers and Arms for 13 years and now rebrand to something new and exciting - watch this space and head along to support them on Saturday at Kohimarama Beach! - 2 minutes ago

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We met for our quarterly board meeting today over a lovely lunch prepared by our Design Director Cat. It's a funny thing how So many great ideas and conversation can come about just by sharing a meal with one another. We are excited for what's to come! If you'd like to be a volunteer on our installation,dm us! To donate text 44-321 Oasis!
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#theoasisalliance #interiordesign #nonprofit #nonprofitorganization #design #healingdesign #youareloved #helpingothers #designnonprofit #home #youarenotalone #womenleaders #healers #love #family #donate #charity #healingspaces #turningahouseintoahome

We met for our quarterly board meeting today over a lovely lunch prepared by our Design Director Cat. It's a funny thing how So many great ideas and conversation can come about just by sharing a meal with one another. We are excited for what's to come! If you'd like to be a volunteer on our installation,dm us! To donate text 44-321 Oasis! . . . . #theoasisalliance #interiordesign #nonprofit #nonprofitorganization #design #healingdesign #youareloved #helpingothers #designnonprofit #home #youarenotalone #womenleaders #healers #love #family #donate #charity #healingspaces #turningahouseintoahome - 3 minutes ago

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Q’s Tacos Restaurant will be showing Kobe and Gianna Bryant’s celebration of life starting at 10am tomorrow! Join us for $2 margaritas! Q’s will also donate 24% of our sells on 2-24-20 to the Mamba & Mambacita Sports Foundation. Please join us to honor of Kobe and Gigi Bryant. @mambamambacitasports @vanessabryant @mambasportsacademy

Q’s Tacos Restaurant will be showing Kobe and Gianna Bryant’s celebration of life starting at 10am tomorrow! Join us for $2 margaritas! Q’s will also donate 24% of our sells on 2-24-20 to the Mamba & Mambacita Sports Foundation. Please join us to honor of Kobe and Gigi Bryant. @mambamambacitasports @vanessabryant @mambasportsacademy - 3 minutes ago

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Let the #madness begin! Its going down #phase2 💯🤑🛹 #localbusiness #family #wiscoskate donate today portageskatepark.org #donate 💰💵💸 ALL donations x2🏧

Let the #madness begin! Its going down #phase2 💯🤑🛹 #localbusiness #family #wiscoskate donate today portageskatepark.org #donate 💰💵💸 ALL donations x2🏧 - 3 minutes ago

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Have you purchased your Soup Supper tickets? You don’t wanna miss out! T -13 days
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#soupsupper #shelterfromthestorm #lagrande #unioncounty #easternoregon #domesticviolence #sexualassault #stalking #donate #support

Have you purchased your Soup Supper tickets? You don’t wanna miss out! T -13 days . . #soupsupper #shelterfromthestorm #lagrande #unioncounty #easternoregon #domesticviolence #sexualassault #stalking #donate #support - 4 minutes ago

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https://mazatlananimalrescue.com/adoptable-dogs/

Bianca
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#adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters

https://mazatlananimalrescue.com/adoptable-dogs/ Bianca . . . #adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters - 5 minutes ago

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1. Avocados (x4)
2. Onions (x2)
3. Bananas 
4. Tortilla wrap
5. Milk
6. Carnation Milk (x3)
7. Samon
8. Potato Bread (x2)
9. Hot chocolate
10. Orange Juice
11. Fronzen Mangos, Blueberries,
Peaches.
12. Eggs
13. Bacon
14. Honey Ham
15. American cheese
16. Yogurt
17. Chocolate peanut butter bar 18. Coconut ice cream
19. Cinnamon Toast Crunch
20. Chicken Strips
21. Tuna (x5)
22. Mayonnaise 
23. Coffee
24. Frozen Sausages

This is my grocery shopping list, If you'd like to send me money for food reply with a dm. Thanks!. Btw im poor so any amount is appreciated
#homeless #homelessness #poor #donate #charity #givingtotheneedy #please #give #avakininstagram #avakin #avakinlifegame #avakinlifeofficial #avakinlife

1. Avocados (x4) 2. Onions (x2) 3. Bananas 4. Tortilla wrap 5. Milk 6. Carnation Milk (x3) 7. Samon 8. Potato Bread (x2) 9. Hot chocolate 10. Orange Juice 11. Fronzen Mangos, Blueberries, Peaches. 12. Eggs 13. Bacon 14. Honey Ham 15. American cheese 16. Yogurt 17. Chocolate peanut butter bar 18. Coconut ice cream 19. Cinnamon Toast Crunch 20. Chicken Strips 21. Tuna (x5) 22. Mayonnaise 23. Coffee 24. Frozen Sausages This is my grocery shopping list, If you'd like to send me money for food reply with a dm. Thanks!. Btw im poor so any amount is appreciated #homeless #homelessness #poor #donate #charity #givingtotheneedy #please #give #avakininstagram #avakin #avakinlifegame #avakinlifeofficial #avakinlife - 6 minutes ago

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Another exclusive joint I live painted for @ariansff to auction off!! Very thankful I can help raise money with my fingertips!! God is good!! ❤️🔥🙏🏽🙌🏽👨🏽‍🎨🖌🎨🖼🌵 .
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#iamjpierce #artbyjpierce #designer #artist #jpierce #original #art #artwork #fashion #lifestyle #liveart #ariansfamilyfoundation #donation #charity #liveauction #auction #donate #thankful #blessed #godisgood #originalart #artcollectors

Another exclusive joint I live painted for @ariansff to auction off!! Very thankful I can help raise money with my fingertips!! God is good!! ❤️🔥🙏🏽🙌🏽👨🏽‍🎨🖌🎨🖼🌵 . . . . #iamjpierce #artbyjpierce #designer #artist #jpierce #original #art #artwork #fashion #lifestyle #liveart #ariansfamilyfoundation #donation #charity #liveauction #auction #donate #thankful #blessed #godisgood #originalart #artcollectors - 6 minutes ago

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https://mazatlananimalrescue.com/adoptable-dogs/

Bamboo
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#adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters

https://mazatlananimalrescue.com/adoptable-dogs/ Bamboo . . . #adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters - 6 minutes ago

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Meet Taki! This adorable pupper lives in Austin. Thanks Cole for commissioning him and supporting the cause.
#pawsforacause #colorfulpainting #acrylicpainting #petportrait #austindogs #donate

Meet Taki! This adorable pupper lives in Austin. Thanks Cole for commissioning him and supporting the cause. #pawsforacause #colorfulpainting #acrylicpainting #petportrait #austindogs #donate - 6 minutes ago

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https://mazatlananimalrescue.com/adoptable-dogs/

Annie
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#adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters

https://mazatlananimalrescue.com/adoptable-dogs/ Annie . . . #adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters - 7 minutes ago

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https://mazatlananimalrescue.com/adoptable-dogs/

Amalia
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#adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters

https://mazatlananimalrescue.com/adoptable-dogs/ Amalia . . . #adoptnobuy #refugioanimal #adoptar #adopta #dog #cat #animalsanctuary #animalshelter #donate #adoption #adoptions #puppies #kitties #adoptme #animallivesmatters - 7 minutes ago

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You wanna see the magic or you wanna be the magic as my lil bro @thekevooo would say. Well Prison To The Streets would much rather be the magic. Changing Lives with our innovative ETLE Approach. “From yesterdays stones on the corner to tomorrows cornerstones” #prisontothestreetscorp #501c3 #501c3nonprofit #2wenty5ive8ight #bidkidz #blessedandhighlyfavored #silkscreenprinting #vinylprinting #community #restorationvsgentrification #lowereastside #les #fundraiser #fundraising #donate #philanthropy #reentry #educationalalliance #bethelight #ittakesavillage #prisontothestreets #fashion #urbanfashion #youth #atrisk #restorativejustice #students #advocates #mediation #realtalks

You wanna see the magic or you wanna be the magic as my lil bro @thekevooo would say. Well Prison To The Streets would much rather be the magic. Changing Lives with our innovative ETLE Approach. “From yesterdays stones on the corner to tomorrows cornerstones” #prisontothestreetscorp #501c3 #501c3nonprofit #2wenty5ive8ight #bidkidz #blessedandhighlyfavored #silkscreenprinting #vinylprinting #community #restorationvsgentrification #lowereastside #les #fundraiser #fundraising #donate #philanthropy #reentry #educationalalliance #bethelight #ittakesavillage #prisontothestreets #fashion #urbanfashion #youth #atrisk #restorativejustice #students #advocates #mediation #realtalks - 10 minutes ago

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You wanna see the magic or you wanna be the magic as my lil bro @thekevooo would say. Well Prison To The Streets would much rather be the magic. Changing Lives with our innovative ETLE Approach. “From yesterdays stones on the corner to tomorrows cornerstones” #prisontothestreetscorp #501c3 #501c3nonprofit #2wenty5ive8ight #bidkidz #blessedandhighlyfavored #silkscreenprinting #vinylprinting #community #restorationvsgentrification #lowereastside #les #fundraiser #fundraising #donate #philanthropy #reentry #educationalalliance #bethelight #ittakesavillage #prisontothestreets #fashion #urbanfashion #youth #atrisk #restorativejustice #students #advocates #mediation #realtalks

You wanna see the magic or you wanna be the magic as my lil bro @thekevooo would say. Well Prison To The Streets would much rather be the magic. Changing Lives with our innovative ETLE Approach. “From yesterdays stones on the corner to tomorrows cornerstones” #prisontothestreetscorp #501c3 #501c3nonprofit #2wenty5ive8ight #bidkidz #blessedandhighlyfavored #silkscreenprinting #vinylprinting #community #restorationvsgentrification #lowereastside #les #fundraiser #fundraising #donate #philanthropy #reentry #educationalalliance #bethelight #ittakesavillage #prisontothestreets #fashion #urbanfashion #youth #atrisk #restorativejustice #students #advocates #mediation #realtalks - 10 minutes ago

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“We Sort You”, always making sure the kitchen and beds are made on the first day of moving in. We project manage you’re move from start to finish stress free. Follow the link in our bio for more information or call us on 0418 371 968.

“We Sort You”, always making sure the kitchen and beds are made on the first day of moving in. We project manage you’re move from start to finish stress free. Follow the link in our bio for more information or call us on 0418 371 968. - 10 minutes ago

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Rearranged the living room this weekend 🏡 What do y'all think?
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"Your friendly neighborhood Realtor®"
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🏠I'm never too busy for your referrals🏠
🏠C: 810-569-1462🏠
🏠E: ryanbean@refacmi.com🏠
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#LiveLoveLocal #BuySellDonate #CAUSEWeCare #RealEstateForACAUSE #REFAC #Realtor #RealEstate #RealEstateAgent #YourFriendlyNeighborhoodRealtor #Home #House #Charity #Donation #Donate #Seller #Buyer #Offer #JustListed #LivingRoom #Furniture #Rug #Couch #Recliner #CoffeeTable #Fireplace #Decor #Rearranging #SpringCleaning

Rearranged the living room this weekend 🏡 What do y'all think? . "Your friendly neighborhood Realtor®" . 🏠I'm never too busy for your referrals🏠 🏠C: 810-569-1462🏠 🏠E: ryanbean@refacmi.com 🏠 . #LiveLoveLocal #BuySellDonate #CAUSEWeCare #RealEstateForACAUSE #REFAC #Realtor #RealEstate #RealEstateAgent #YourFriendlyNeighborhoodRealtor #Home #House #Charity #Donation #Donate #Seller #Buyer #Offer #JustListed #LivingRoom #Furniture #Rug #Couch #Recliner #CoffeeTable #Fireplace #Decor #Rearranging #SpringCleaning - 11 minutes ago

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